Life-saving bandages for an individual with EB can cost up to $10,000 per month. Orphans with EB are frequently without the care they need to protect existing wounds and protect new ones, leading to infection and even possibly death.
Challenges orphanages face with children with EB
Lack of education on how to best care for EB patients
Few doctors who understand EB
Unaware of supplies available
Little to no access to supplies/funds for supplies
Fear of causing more harm with touch
And many more...
EB Promise identifies a child or a child is referred and a relationship with the child's caregivers and/or adoption agency is formed
EB Promise provides education on EB and supplies that are typically used and are available, and then helps in determining how to best meet the child's needs
EB Promise provides supplies to each child, soliciting donations of and purchasing what is not already in our inventory. Wound care guides and instructions are included in the appropriate language
EB Promise follows up with caregivers, re-assesses needs, and prepares to send the next round of supplies
Supplies are labeled and instructions in the caregivers' language
(when possible) are included
Interested in helping us provide live-saving bandages and medical supplies to children in need? See our "Donate Supplies" page for a list of speciality and over-the-counter supplies needed. Speciality bandages can be purchased through the links provided on that page and over-the-counter supplies can be purchased at your local pharmacy. We also graciously accept donations from EB families who have extra supplies.
Please note that we are well aware of the realities of the world and what sometimes happens in impoverished countries. We do not deliver supplies to an orphange or foster home without a trusted contact there who is able to ensure that supplies are used in the intended way and for the intended child.