Are you adopting

(or considering adopting)

a child with EB? 

We are here to help.

Interested in supporting

families who are new to EB?

We can connect you.

Adopting a child can be an overwhelming process. Adopting a child with EB can be even more overwhelming, especially if you are new to EB. But we have good news: you do not have to do it alone. The EB community is behind you the whole way!

I'm adopting (or considering adopting)!

Let us know how we can support you. We have a number of resources available to you...

  • Family Support Network - a group of EB experts (individuals with EB and their primary caregivers) who are available to you to answer questions and provide encouragement

  • Possible peer match with a family who has previously adopted a child with EB

  • Guidance through the adoption process 

  • Resources/educational materials on adoption

  • Resources/educational materials on EB

I have experience with EB and knowledge to share!

Join our Family Support Network (FSN) to support families adopting or considering adopting children with EB. As a member of the FSN you will receive occasional emails - no more than two per month - from EB Promise relaying questions from adoptive families. It's no commitment, simply fill out the form below!