Caden is a precious two year old little boy living with EB. He is in the loving care of a foster mother and is eligible for adoption. Although he is incredibly blessed to be so well loved and cared for, his environment and circumstances still make his immense wound care needs difficult.
Waiting for Families
Interested in learning more about adopting one of these beautiful children? Please email us and we will put you in direct contact with the child's agency!
Children with EB are often referred to as Butterfly Children because their skin is as fragile as a butterfly's wings.
Please note that EB Promise does not handle adoptions directly. For the safety and protection of both children and families, EB Promise refers interested adoptive families to licensed adoption agencies.
Zoe is a shy but kind 4 year old little girl. She follows directions and can speak in simple sentences. She loves sports, singing, and dancing. She gets along well with other kids but typically plays alone. Please let us know if you are interested in learning more about Zoe!
Ozzy is a 10 year old engaging, caring, outgoing and obedient boy. He forms strong relationships with others and is a leader for the other children in his orphanage. We would love to tell you more about Ozzy, so please contact us to learn more!
Sean is a strong seven-year-old little boy living with EB. His country's privacy laws prevent us from sharing his photo or any additional information, so please contact us directly to be connected with his agency. We know you'll fall in love with him, just as we have.
Srey Ya is three years old and living in an orphanage in Cambodia. International adoption from Cambodia is not currently legal to families of any country. We are currently working to advocate for an exception to be made, but it is a difficult process. If you are interested in learning more about how you can help us serve Srey Ya, please contact us.
OTHER EB ORPHANS
There are several more EB orphans that we know of who and we are working on building relationships with their caregivers. Please pray that we will be able to overcome language barriers and other obstacles. Stay tuned for more information!
Tam Anh is a five year old little girl living in an orphanage in Vietnam. We are still in the process of learning more about Tam Anh, but please get in touch with us and let us know if you're interested in knowing more about this sweet girl.
Anton was born a twin. His twin was healthy, and he was born with EB, and as a result he was abandoned. Anton was adopted by the Delgado family and thrived for years as a member of their family. He died in December of 2015 due to intussusception after receiving a bone marrow transplant (BMT). Read more about Anton here.
Coming Home Soon
With Forever Families
Sadly, Yuri died alone in an orphanage while his forever family fought incredibly hard to bring him home. He did not have access to proper medical care and died as a result. It is our hope and prayer that no other child's story ends like Yuri's. Read more about Yuri here.
Georgia (Gia) was adopted in 2014 at age three and had RDEB. She loved Minnie Mouse, playing outside, and going to school. Gia sadly passed away in April of 2016 at the age of six years old.
Raul was born in Romania with severe RDEB. He was brought to the US on Humanitarian Parole and was granted permanent residency in 2013. He underwent a bone marrow transplant (BMT) which was successful, but unfortunately led to other issues including HLH and kidney failure. Raul passed away in May of 2016. Read more about Raul here.
Travis is three years old and is in an orphanage in Eastern Europe. Sadly, he is in critical medical condition. He had a family pursuing his adoption who learned, after visiting him in person, that his condition was too dire to permit travel. EB Promise is currently working with several agency partners to determine how to best support Travis. (Note: this child also goes by the alias "Titus")
As of Nov. 4th 2017, Maggie is HOME! Maggie is the first child that EB Promise has seen through from advocacy to completed adoption. More about Maggie's story will be shared soon! Please pray for Maggie and her family as they make this giant transition home.
Meili came home to her loving family in December 2017 and has been doing wonerfully! Meili was known as "Lexi" online before her adoption and she was the first child EB Promise helped to find a family for and see through homecoming! We are so grateful for Meili's life and can't wait to see the great things she does!
Lily is a precious little girl who has been waiting for a family for too long. We aren't quite sure if Lily has EB or not. EB is her diagnosis from her birth country, but specialists reviewing her file are unsure. Nonetheless, Lily has some type of skin condition and needs a forever family, and finally has one coming for her! We are so excited for Lily and her family.
Olive is a sweet, three year old girl from China who came home in November 2017! Despite the pain that she deals with every day she is joyful and full of life. Olive is no longer an orphan and is now a beloved daughter and sister!
Shon is a sweet, intelligent 8 year old little boy who has finally been matched with and brought home to his family in early Nov. 2017! Shon joins a family who is experienced with international adoption and loves him fiercely! Please pray for Shon and his family as they transition home together!
Chaz is an active 4 year old little girl. She is sensible and obedient with good fine motor skills and normal mental development. She sounds like she is a fun, extroverted girl. Chaz likes to study, sing, play outside and recite children’s poems. This little girl is ready to be part of a loving family! Contact us for more information on this sweet girl!
Caroline was adopted in 2015 at age five and she adjusted to family life right away. She has EBS-DM and has daily blistering, but doesn't let it get in the way of hiking, playing with her siblings, or coloring!
Hanna was adopted at the same time as her big sister Caroline; she was three years old at the time. She has very mild EB, not sure what type yet. She loves animals, running, and playing with her baby doll!
Julianne was born in China and diagnosed with Epidermolysis Bullosa when she was very young. She was adopted when she was three years old, and has brought joy and an extra dose of spunk to her family! Though they had never heard of EB before seeing her, they have learned how brave and strong these fragile butterfly children truly are.
Alex is the biological brother of Jayne and Ellen. He joined our family a year after the girls. He tells me I'm cute and brushes my hair and will tackle you hard if you take his round brush before he done with it. He is quick with boy jokes and gives his 14 year old brother a run for his money. Life would not be complete with this sweet boy in our family.
Beautiful Jayne was born in the United States. She lived 3 months in a hospital and was then transferred to medical foster care. She joined our family shortly before her third birthday. She is is sparkly and sassy and loosing teeth like crazy, which is just as it should be for someone in first grade.
Ellen is the biological sister of Jayne. She came to our family shortly before she turned two. She has a sparkle in her eye that is a small glimmer of the love, compassion and fight that this amazing girl posses. She loves hard and jokes often and our lives are better because she is our daughter.